The MDS Foundation is registered as a 501(c)(3) charitable organization with the IRS. Federal EIN #22-3283911

When you give to The MDS Foundation, you give hope.

Founded nearly 30 years ago as the first nonprofit devoted 100% to MDS, The MDS Foundation has been the gold standard of support and outreach to MDS patients, caregivers, and families.

Some of the things we do because you donate:

  • Accelerate knowledge and treatment protocols.
  • Collaborate with pharmaceutical partners. This has led to more patients on clinical trials and improved treatments.
  • Support the physicians who developed the IPSS classification system that helps doctors make accurate assessments of the urgency of each MDS case.

These are just some of the ways The Myelodysplastic Syndromes Foundation has major impact on the diagnosis and treatment of MDS around the world.

Top 5 MDS Facts

12-20k new cases

of MDS are reported every year in the U.S., with an average of 33-55 people diagnosed in the U.S. every day.

60-170k people

are estimated to live with MDS in the U.S. with an estimated 87,000 new cases each year worldwide.

75% of MDS patients are 60+

years of age, and the disease also can affect children and young adults.

1 out of 3 MDS patients (33%)

progress to acute myeloid leukemia (AML).

Up to 6 years

is the average survival rate for lower risk patients (who do not receive a bone marrow transplant) and approximately 5 months for high-risk patients.

Contact the mds foundation

Contact Us

Call: 1-800-MDS-0839 (US) | 1-609-298-1035 (Outside US)
Fax: 1-609-298-0590
Email: Trhodes@mds-foundation.org